• Boo at the Zoo 2016

    Boo at the Zoo 2016

    An October update?  but it's December!  Yea, I know, [voice inside my head], but we need to get caught up and hopefully stop your constant nagging.  Sheesh

    I am going to try my best to get all of 2016 caught up.  So prepare your hearts for Nora updates henceforth. 

    Okay, way back in October, we took Nora to her 5th Boo At the Zoo event.  These trips have only been possible because of how absolutely wonderful and kind the staff is at the Knoxville Zoo [Yes, you Allison].  Each year, they allow Nora special private access to this awesome event.  There are literally thousands of families that arrive in costume to trick-or-treat their way through the zoo.  The turn out is simply...

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  • Help us say thanks

    Help us say thanks

    In the spirit of Thanksgiving, we have to tell you about what Tiffany Green has been doing for Nora.  Tiffany, who you may remember as my friend and long-time sister, gave Nora a pledge last Christmas.  That pledge was to spend 2016 running for Nora - literally ruhh-ning, like with the shoes and the races and the self-motivational stuff.  So, did she do it? Did she really run for a whole year? Continue reading...
  • Nora's Wagon

    Nora's Wagon

    Nora has been tolerating her regular EasyS stroller wheelchair less and less. You know the one I'm referring to if you've been following us for a little while or have watched any of our YouTube channel videos.  The chair is still our main mode of transportation for short trips (90 minutes max).  
    Fun fact:  Nora's first wagon was red and plastic.  We recieved it from FSMA, who is now CureSMA. They sent Nora a SMA care package of sorts, shortly after her diagnosis. Continue reading...
  • One beautiful girl

    One beautiful girl

    We recently received these pictures we had taken at the start of the school year.  We were very happy with how great they turned out.  Nora looks so beautiful.
    Before the photo-shoot,  Nora was worried about having to wear her mask for pictures, which breaks our hearts because it means she's self conscious about her mask.   At the same time though, she was very worried we would take her mask off Continue reading...

SMAQuilts

How you make a difference for SMA. 1200 Quilts and counting all made by one woman - Nora's Grandmother Cindy Bobolz. Read about her amazing project

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goodentree    /ˈgo͝odənˌtrēˈ/   noun

derived from our last name: Gooden and the idea of a family tree We came up with the name after we made the decision to start a family (have a child).
When Nora was born and diagnosed with the terminal disease SMA, her story quickly spread, and goodentree became established.