Articles in Category: Nora Updates

06 21 Cereal and swimming

Cereal and swimming

 

Well we are trying to keep business as usual for this site until we find the diagnosis.  So on that tip, we have some updates!

We have been feeding Nora cereal for the last 4 days and she's taking to it like a champ.  She usually eats about 2 teaspoons worth in addition to her nighttime 6oz bottle.  We are now combining 4oz of breast milk and 2oz o...

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06 17 The sad facts

So, I've been purposely delaying writing this update.  It's taken me about a week to finish this without getting emotional.

As many of the regular visitors to the site have seen, the issue with Nora's lack of movement has been a concern since she was about 2 months old.  We had hoped that one day Nora would catch up or snap out if it...

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06 09 Grandma visit

Jaime's Mom and little brother visited from Wisconsin this weekend.  Here are some pics from the Forbidden Caverns in Sevierville, TN.  Nora also went to the pool for the first time.  The water was too cold so she didn't go swimming.

She has started sticking out her tongue and making a "smack" occasionally which is funny as heck....

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06 06 Physical Therapy

We had a PT appointment today.  We had hoped we would get some type of answer for why Nora has low muscle tone (especially in her legs).  The PT appointment was recommended by our Pediatrician.  The therapist ran some tests to determine which milestones Nora has achieved.....

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06 01 Jaime's 31st birthday

Jaime's 31st birthday

Jaime the super mom is turning 31 today June 2nd.  It's her first birthday as a mom!  Happy Birthday Jaime!!!!!

Your husband is very proud of you not only for how far you've come in life after 31 years, but also just how much of a fantastic person you are.  I am lucky enough to have been with Jaime for more then a 1/3 of her life...

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05 31 An evening on the deck

An evening on the deck

It was such a nice evening on Saturday we spent a few hours on the deck.  Nora has really been making a lots of new high pitched cute baby noises so she kept us entertained.  She also has started grabbing everything close to her and cramming it in her mouth.   She even tried [unsuccessfully] to fit both

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05 28 Nora and the younger man

We took this video on Memorial day weekend.  This is Parker with Nora.  Parker, if you remember, is our friends baby boy who came into the world exactly two weeks after Nora.  The video also shows how little Nora moves her legs compared to the younger Parker. 

We are working on Nora legs.  There is a physical therapy appointment on June 5th for little Nora.  Hopefully they can help kick start her leg development (sorry about the pun)....

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05 28 An afternoon without baby

An afternoon without baby

Jaime and I got a break on Memorial day when daycare was open and we had off of work.  We dropped off Nora for a few hours and went golfing!  Despite it being Knoxville's worst golf course, we still had a great time and had great weather.  Oh yeah, and I won .... barely....

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05 20 Look who's sitting

Look who's sitting

We tried out the Bumbo (which is really just a fancy baby seat) that we got from our friends.   Nora loved it!  Her legs may not be working well yet, but she has a lot of neck strength.  Jaime was also messing with Nora in the bath tub.  Bath time has to be one of Nora's favorite activities.

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05 18 Gaylord Opryland

Gaylord Opryland

We went to Nashville to visit some of our good Wisconsin Friends this weekend.   This was Nora's first overnight trip so we were pretty worried.  We packed almost everything we owned that was baby related.  It was all for nothing.  Nora was perfect; in fact she almost behaved better in the hotel then we she does at home.  She was only fussy for about 6 minutes on the entire trip!

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goodentree    /ˈgo͝odənˌtrēˈ/   noun

derived from our last name: Gooden and the idea of a family tree We came up with the name after we made the decision to start a family (have a child).
When Nora was born and diagnosed with the terminal disease SMA, her story quickly spread, and goodentree became established.