Articles in Category: Nora Updates

05 25 Nora struggling cont.

Nora struggling cont.
Day two and no real improvement.  Nora is still plagued by stomach pains.  It's been difficult to get food into her belly without causing more pain.  We've been keeping her on her feeding pump, which provides a constant drip of food rather then take... Share this

05 23 Nora struggling after close call

Nora struggling after close call
Late in the day, I received a call from Nurse Kim.  I could hear how frightened she was as she said, "You need to come home now."   "What's wrong!?" I asked.  Kim replied "Nora choked".
I slammed the phone down and three seconds later I was racing down a backstreet trying to gain more speed.  It takes me 14 minutes to get home if I drive very fast.   I made it home in 8 minutes, and broke nearly a dozen traffic.... Share this

05 17 11 years together

11 years together
Today is the anniversary of the best day of my life.  The day I married Jaime.  
It's been quite a journey together so far.  We were joking awhile back and we've both spent more time together life than we've been apart.  Yet, I still get excited to see her in the mornings and come home... Share this

05 13 Nora shoots a paintball gun

Nora shoots a paintball gun
-----This was an older post, I somehow forgot to publish.-------
Jaime actually had the original idea - to see of Nora could shoot a paintball gun.  I ran with it.  I remembered I owned a special paintball gun that used an electronic trigger.  It was a bit tricky, but I installed a... Share this

05 09 unravel

We started playing this new game on our Xbox called UNRAVEL.  It's about this little red character "Yarnie" who is made of guessed it, yarn.  The game is full of puzzles and the goal seems to be around collecting memories.  We all enjoy it a lot.  Nora loves the Yarnie character and helping us figure out the puzzles.  Honestly, Nora has got us... Share this

04 29 American Girl surprise

American Girl surprise
I had to travel recently (hence the mask) and the place I went had an American Girl store.  I couldn't pass up the opportunity to get Nora a little something.  So, we got to sit together and open presents - which is about my most favorite thing to do.  You'll have to look at the pictures to see what she got. Share this

04 15 Nora looses some teeth

Nora looses some teeth
At 7 years old, Nora had already lost a few of her baby teeth.  One in particular she lost about two years ago, but it simply disappeared one day.  We searched her mouth but came to the conclusion it went down her throat.  We knew it wouldn't make it to her stomach since she had a... Share this

04 05 Mall Easter Bunny

Mall Easter Bunny

We took Nora to the mall to see the Easter bunny in person. Prior to this visit, Nora's mall experience was simply sprinting from an entrance to build-a-bear or the Disney store. That was only a handful of times too - the mall isn't a place we frequent. This particular mall however was close to our house and ... how do I say this...

Share this

03 28 Easter Egg hunt

Easter Egg hunt

We hosted the annual Nora Easter egg hunt as usual. Except this year I neglected to take enough picture, opting instead to film the entire event. (keep your eye open for it's forthcoming release).

This year the bunny nearly tripled the number of...

Share this

03 25 Let's make a deal

Let's make a deal

Nora is all about making deals lately. She uses deals mostly to try and get out of doing things she doesn't care for, like coughing and baths. Most of the fun comes because her deals are absolutely terrible. It's a lot like that old 80's game show except we don't have to wear costumes. Here's an example of a Nora deal...

Share this

goodentree    /ˈgo͝odənˌtrēˈ/   noun

derived from our last name: Gooden and the idea of a family tree We came up with the name after we made the decision to start a family (have a child).
When Nora was born and diagnosed with the terminal disease SMA, her story quickly spread, and goodentree became established.