Nora turns 18 months old

25 July 2010

On July 23rd Nora turned 18 months old. This is a huge milestone for us because we really didn't think it could happen.  Nora's steep decline early in her life and the almost monthly sicknesses made 18 months seem like an impossible achievement.  We are so proud to be parents and absolutely love each day we get to spend with Nora.  Specifically related to the last post, we only get angry and depressed when we think about that day when we cannot care for Nora any longer.  Sometimes it gets hard to face the truth that no matter how hard we love and care for Nora, it won't change the diagnosis.

For now we have a 18 month old girl who weighs 18 lbs 10 ounces and is 32 inches long.  She has mini tantrums when to take something from her, intentionally throwing things on the floor, actually practices jabbing glowsticks up her nose and in her eyes, and smiles when she farts.... even in her sleep.    So in other words, she's like any other 18 month old.

YouTube video of Nora's first taste of cake

Comments  

 
0 #1 Montana Grandma 2010-07-24 22:19 What a wonderful, gooey, colorful birthday cake. Happy Birthday Nora. Hugs and much love. Quote
 
 
0 #2 Julie Coddington 2010-07-25 08:20 Happy 18 month old birthday to Nora. She is such a beautiful girl. We follow her adventures on your website (as our angel Emily had SMA) You guys are such great parents to her- I am always in amazement at your strength and the full, happy life you guys are able to create for her. One look at her pictures and you can tell what a happy girl she is and how much she is loved. Congratulations on the milestone :) Quote
 
 
0 #3 Aunt Tiffany 2010-07-25 09:58 Hooray for 18 months! What an amazing difference she has made in so many lives.

Holy frosting, batman! Quote
 
 
0 #4 Nurse Kim 2010-07-25 19:46 I love how the cake matches the dress that matches the bow that matches all her pink and green stuff. TJ is so color coordinated! (NOT) I totally know that's you Jaime.

Here's to the 18th of many month(days) to come for Nora. Will be hitting the 2 year mark before you know it! Quote
 
 
0 #5 Margaret Linzmeier 2010-08-09 20:42 Hi Nora,
I am friends with your Grandmother, Martka, and your Aunt Lauren. I have been watching you grow up, through your parents website. You are a Fabulous girl!! I am very impressed with your wonderful parents! Thank you for sharing your lives with us. You are amazing. I think and pray for your family daily. With love and best wishes, Margie.
Enjoy and appreciate each day, as we all should. God bless. Quote
 

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