Update for May 31st - Bubbles!
Written by TJ and Jaime
|
01 June 2010
So Nora seems to be the last stage of her sickness. We are now getting the remaining junk from her lungs. Technically an Xray would still show her as sick but we know she is almost through this. Her heartrate is back to normal when she's sleeping which is the biggest hint we are on the mend. Her stats still dip from time-to-time but it's only when she needs to be coughed. I bet another three days of heavy coughing and chest PT will clear the last bit out.
So on to the fun stuff. We are in the process of building a little arm cart for Nora. It's just so she can move her harm around easier (less friction). We saw a picture of another child using one on a Montana SMA site. They used a different design, which wouldn't suit Nora, so we changed it quite a bit. So far it works great. She drew a really nice picture with it!
Nora's bubble addiction is at it's peak in the Gooden household. Jaime said she could literally do bubbles all day without Nora getting bored. Nora even throws a fit when we pretend to take away the bubbles. The cool thing is Jaime has really worked with Nora and perfected bubble blowing. She even got her to do the bubble blow on command. Jaime just says "bubbles!" and Nora gives a few puffs of air. It's fun for the whole family. Nora loves bubbles, Jaime loves entertaining Nora, I love taking pictures, and Bentley (our dog) loves eating bubbles. Jaime even drank bubbles on accident this weekend - that's how much we all love bubbles.
Goodentree 3.0 is slow going. I have not had as much time as I need to finish this weekend. So it's going to be a updating all week. Just another reason to keep checking back each day.
