Nora's pigtails
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15 July 2010
Ever since Nora's hair started to get really long, Jaime has been itching to put her [Nora] in pony tails. She finally felt Nora was ready for the tails. I didn't see what the big deal was all about, until I got to see Jaime's work. Nora looked so cute and grown up. Mom [Jaime] knows best when it comes to Nora's hair. Jaime also made a strawberry cake and let Nora taste test the frosting - hence that picture with frosting on her face. It was just after Nora's nap so she still has a little mark from her BiPAP mask. Now that Nora is getting better at managing her saliva, we've really started experimenting with tastes. It's good that we can at least share a little of what normal children get to experience.
Our pulmonary vest looks like it might get ordered this week. It's been stuck in the "insurance zone" for the last two weeks due to it's price no doubt. At $15,000 it will be one of the more expensive items in Nora's medical collection. This will replace out vibrating wand we use for airway clearance treatment (Chest PT) twice a day.
Jaime's new bow creation is a snail. Neat huh? I have no idea how she makes them but I know it involves baking ribbon in the oven. This will become Jaime's fallback career I think.
and last but not least. Jennifer Goodson won the Ponderosa Challenge so she earned a special shout out by Nora. Jennifer got the right answer which was a zebroid or zebrule. Jennifer is another Type-1 SMA Parent of Jacob who I actually got to meet at the 2010 SMA Conference.



















